Sunday, July 31, 2011

Love this quote!

"You are not disabled by the disabilities you have, you are able by the abilities you have."
-Oscar Pistorius

Friday, July 15, 2011

Recent Pics

Recent pics of our little man:

DYLAN LOVES...

{Playing/being with his big brother, Kaden}


{Exploring what he can get into/playing with toys}


{Jumping in his jumperoo}


{Eating!}


{Sitting like a big boy!}


{Being outdoors}


{Being in water...although this picture doesn't show it. This was his first time in a pool, so he was a little reserved}


{And just being TOO darn cute!!}



HOW LUCKY AM I?



HAPPY FAMILY!

June 2011 Update

We had another appointment with Dylan's orthopedic surgeon on Tuesday, June 21st. It went really well. We went prepared with our lists of new questions to ask and we got some really good solid answers.

There are still a lot of "if this, then that" in the mix, so there are still no definitive answers as far as WHAT is being done. And we are totally okay with that. We understand why and we agree with everything.

Our main question was if there was a general time frame that we could expect this all to start happening. Obviously, we want what is best for Dylan, both physically AND emotionally. We were just worried about it being more psychologically damaging for Dylan if, let's say, he gets his leg amputated at age 4 or 5 as opposed to 1 or 2. Try imagining explaining to a 4 or 5 year old who gets that they have a leg, they might also kind of understand that it's different than his other leg, but it's still there nonetheless and they've made it work for the past 4 or 5 years and they will remember that they had one, that they are going to go to sleep and when they wake up their leg is going to be gone. I would imagine that would be much harder to explain and for them to really understand than to a 1 or 2 year old, who won't quite get much of it. Anyway, so that has been a concern of ours. Obviously though, we want what is best for Dylan, we just need to take in every aspect, and if it was best for Dylan to do the amputation at a later age and we felt that would work out, we would do it. ANYWAY, Dr. E agreed with us though. He said that ideally he would like to have this type of surgery done before the 1st birthday. But he has other issues with his femur and knee that all need to be considered. Amputation is not reversible and he wants to make sure we do the absolute best procedure we can for Dylan, which will require a little more time to see how certain parts continue to develop.

So we know that it is almost 100% going to be some sort of amputation/prosthesis route and we know that it will most likely be done before his 2nd birthday. At this point there are three different procedures that we have talked about. The most ideal would be a below the knee amputation. He said the amputation would be right at/above the ankle. That would give him the best functionality with a prosthesis. The second best option would be the Van Nes Rotationplasty that I mentioned in the March 2011 update. You can read about it there. This would give him functionality as close to a below the knee amputation, which again, is ideal to have some sort of "knee" joint. The third procedure would be an above the knee amputation. He did say this would be a little more difficult for Dylan, but that since Dylan is getting it done so young, he will be so used to it and will be able to adapt to it and make it work better than someone who has to get an above the knee amputation later in life. So, it's not a horrible option, it will still work and Dylan will still be able to be active with it, it's just not the most ideal.

The "IF this, THEN that"s that we are watching right now:

IF his knee is stable enough, THEN a below the knee amputation would be ideal.
IF his knee is not stable enough and his ankle is, THEN rotationplasty will most likely be the best option.
IF his ankle is not stable enough, THEN rotationplasty is not an option anymore.
So, IF neither his ankle nor his knee are stable enough, THEN most likely it will be an above the knee amputation.

Things that we observed about each of these body parts in this past visit:

Right now, his ankle is not looking so great as far as being stable enough to handle a rotation plasty and act as a knee joint. It seems to be turning outward quite a bit and the doctor said that it's pretty typical when there is no fibula bone there to anchor it straight. So we're not sure rotationplasty will work after all, but it's still on the table as a possibility as maybe his ankle won't turn too much more and will work after all if we needed it to.

It doesn't appear Dylan has a patella (knee cap). Bryson figured this out a couple months ago as we were feeling Dylan's leg and the doctor confirmed that it does appear that way. At this point neither knee cap is showing up on x-rays as they are still too cartilaginous to see, but you can feel his right knee cap and you can't really feel one on his left knee. It also seems that he is missing some ligaments in his knee, which the doctor explained is why his knee pops so much. Neither of these are detrimental and the doctor said Dylan could still possibly have a below the knee amputation with both of these situations as long as his knee, as a whole, is stable enough. And so far, it appears that Dylan has great movement and stability, so that is promising.

Last appointment the doctor mentioned wanting to keep an eye on his hips and so far those are still looking good. Still too cartilaginous to totally confirm that they are 100% good, but the doctor doesn't seem too worried about them anymore. So that is good news.

The doctor said that what is really throwing him (the doctor) off is the fact that Dylan has such a good foot. He said you almost never see a foot like this on a leg that is missing the fibula entirely (which appears to be Dylan's case). You typically get missing toes or other foot bones, which makes the amputation decision an easier one. So he is having a hard time deciding what to do with that. This, of course, is just one more wrench in our (Bryson and I) thinking...so why was Dylan given this perfect foot? Does this mean something? What are we supposed to do with it? Just more to think about. Obviously, you don't want to get rid of something that is such a rare positive, but at the same time the foot is only as good as the ankle and the rest of the leg. You know? So as much as we would like to keep his perfect little foot, it just may not work.

The last thing talked about was the length of the femur. Obviously if we ended up doing an above the knee amputation that doesn't really matter. However, it MIGHT be an issue if we do a below the knee, but at this point we didn't really even talk about it in detail. He mentioned there is a possibility of doing a lengthening procedure on the femur if we needed to, to get his knees to match up, but that may not be necessary. We will talk more about all that as we start to narrow down the options.

So all in all....we left feeling really good. We have a general time frame that we were hoping to have. And we are making strides in the right direction as far as being able to figure out what exactly our options are and what is going to be best for DYLAN.

The doctor kind of made it sound like we should hopefully know even more at the next appointment (which will be in September), so we're crossing our fingers that is the case. He said his "gut feeling" based on what he saw during this appointment, is that it will end up being a below the knee amputation, which is comforting. Only time will tell if his "gut" is right. :)

They were so impressed with Dylan and how active he is and how he seems to really have that fighter attitude. He is our little warrior! He will be just fine through all this.

They also mentioned how they were so glad that we (Bryson and I) were so positive about this whole situation. They mentioned this last time and the nurse who always comes with Dr. E at each appointment, stayed after again to tell us how she was so impressed with our way of thinking and our positive attitudes. She asked us why we were so okay with this, if we had a medical background or something or if we were just like this. We told her it's just not in our personalities to dwell on the negative, but instead to take the situation we and Dylan have been given and just move forward and make the best of it. I'm kicking myself now for not telling her the deeper reason why we are like this, which is because of our faith. We have a religious understanding of our purpose and of Dylan's purpose here on Earth. We have faith that we will be able to make the correct decisions and that Dylan will be able to live a happy, fulfilled life in this life and that is the most important thing.

I am SO grateful for the knowledge and faith that we have. The knowledge that we are only tested as far as we can handle, that we have a purpose that is so much more than this life, that Dylan was prepared for this life and without a doubt will be able to get through it. Does it make it easy? No. Not at all. This is still very emotional for us. But it makes it easier. This, in the scheme of things, is just a little hiccup. Nothing that can't be conquered.

We just hope and pray that we will be able to give Dylan the tools he will need in life to have this understanding as well. I think that is one of our biggest concerns. WE are the ones that will be responsible for teaching him his worth and his importance, no matter what he looks like or how he walks. It's something that we need to teach to all our children, but it'll be especially crucial for Dylan. The biggest part of this is his attitude and we pray we will be able to help him develop the most positive attitude. I have a feeling HE will be teaching us more than we will be teaching him.

Again, as always, thank you for all of the prayers on Dylan and our behalf. They are felt. They help us get through those more emotional days. And I know that Dylan will benefit greatly from all the prayers said on his behalf.

March 2011 Update

This was from an update we posted on our personal blog in March 2011:

We had another appointment with our orthopedic surgeon yesterday and it went well. I was kind of hoping that we would leave with more of a concrete idea of what the future looked like, but that didn't happen. However, we discussed a lot of things with our surgeon and had a LOT of questions answered and we have a general idea of where things are going. There are just a lot of "IF this, THEN that"s still in the mix. But we'll get there. This is a major test of patience for us, maybe more so me than Bryson...I like to plan things and having things so up in the air drives me a little crazy. :) We're just so happy to at least have a general idea of where we are going.

We are still somewhat in limbo because we still need to watch how things develop, which will determine the exact route we take. We do know, however, and we have felt this for a long time (after A LOT of prayer and thought), that the lengthening surgeries are a no go. His discrepancy is so great it would require multiple surgeries. We're talking YEARS of surgeries, starting from when he was around 4 or 5 and most likely lasting until he was 14 or 15. We would be more than willing to go through years of surgeries if we felt it was the best option for him, however, the doctor said that with the amount of lengthening that would need to be done he would have a pretty high chance of having more issues (function, pain, etc.) that would be life long after. We just don't feel it's worth the chance of him having major pain the rest of his life or not being able to be as active as he could be with a prosthetic or it not even working and having to do the amputation route in the end anyway after years of surgery. We also have a very strong knowledge and faith to KNOW that he will one day be able to run around on two "perfect" legs, it just may not be in this life. We want to give him the best life we can in this life and we feel like putting him through years and years of painful surgeries to possibly get a less than productive or painful result is not the route. The doctor even said that if it was his kid, he wouldn't do the lengthening either. So after talking with the doctor more and hearing all the possible outcomes of the lengthening surgeries we then started discussing the different amputation routes. This is where a lot of the "if this, then that" scenarios come into play. A lot depends on how his hip and knee develops. If his hip is in good shape then there are some really great options to choose from. If it's not, then things will be a little more complicated. Also if his knee is not stable there will be options to give him a better functioning prosthetic as well. With his femur being so much shorter than his other femur, that plays a big part in what can be done as well. The different options we discussed yesterday (and these aren't the final options just some of the ones that were discussed that are high candidates, again depending on so many different factors) were if his knee was good they could do a below the knee amputation and then maybe one lengthening on his femur to get it closer to the same length as the other leg so his knees would bend at about the same point. If his hip looks good, but his knee is not stable enough there is a procedure they would do called a Van Nes Rotationplasty. This is pretty crazy sounding, but it would give him the same general result as a below the knee amputation, but just in a totally crazy way. What they would do is get rid of his knee joint completely, fuse the tibia to the femur to make the femur as long as his other femur, then they would take his foot, turn it around backwards so that his heel would be like his "knee" and his ankle would act as his knee joint. Then they would fit a prosthetic to the foot. So it would be like a below the knee amputation just with the ankle acting as the knee and his foot acting as the stump. Kinda crazy. And if you google that procedure and look at pictures, it's pretty crazy looking. BUT, whatever will give him the most functionality is what we're going for and we are for whatever it will take! Then there is always the above the knee amputation, which he would be able to be active and functional, it's just a little harder than a below the knee amputation or the Rotationplasty. We didn't really even go into the options for if he has issues with the hips. Right now, it's looking promising. He has great movement and motion which is a strong indication that things are okay with his hips, but we don't know for sure because his hips are still too cartilaginous to tell on the x-rays. SO, we will be going back in in another three months or so. We are praying for good hips (please join us in this if you can). Right now it seems like a lot depends on his hips at this point. Until his next appointment, we continue to just let him be a normal baby and continue to pray for the best outcome and have faith that it will happen.

Thank you all SO much for the amazing outpouring of love, concern and support for us. We appreciate it more than can be expressed in words.

Here are some fun pictures from our appointment. Dylan was being super smiley and cute while we were waiting to get the x-rays. Unfortunately our camera didn't flash on the times when he was smiling super big and cute, but I had to include them still anyway. We did catch one small smile with a flash. :)



When he gets his x-rays we have to wear these big vests so we can be in the room and help hold him still and stay positioned. I'm sure the nurse thought we were the biggest nerds taking pictures but we were just having fun. :) (I realize I'm making the ugliest face and the lack of makeup doesn't help either...haha..oh well, fun times!)


Dylan laying on the x-ray table. He was really good this time and let them pull his leg and twist it so they could get the best shots with very minimal fussing. Last time he fought it hard. :)


After x-rays and after the exam with the doctor he fell asleep in my arms while we discussed things with the doctor. When we went to get him dressed again and back in his seat he stayed asleep (so not like him). He must have been REALLY pooped with all the activity! :)

Dylan - Our Little Warrior

Dylan joined our family in December 2010. My pregnancy was a normal pregnancy. No complications. No abnormal ultrasounds. Nothing to worry about. It was fairly stress free and I thoroughly enjoyed being pregnant, just like I did with my first. Labor and deliver, as well, were fairly stress free with no major complications. After around 9 hours of laboring and a quick 1 minute or so of actual pushing, Dylan was born. They put him on my belly immediately. Bryson cut the cord. I cried and cried. Dylan cried and cried. He was beautiful! So perfect! I instantly fell in love with this little boy. It was overwhelming. That moment is something that can't be described in words. Such a sweet, peaceful, perfect moment. Bryson and I were all smiles and so happy. So in love with our new little boy. They took him away to clean him up and measure him. He was perfection!

The rest is an excerpt from a personal blog entry I wrote in February 2011 regarding Dylan's birth and his diagnosis:

After I got to hold Dylan for a little bit, they took him to clean him off, check his stats, etc. As I was watching from the bed while the doctor was fixing me up, on my "just had a baby" bliss/high/awesomeness, I heard words no mother wants to hear, coming from my husband no less, "Is there something wrong with his leg?" The nurses all started fussing around, "No, no". I looked over at the commotion at the table, Bryson bending closer to Dylan, looking closely, the nurses bustling around. I looked over at my doctor with a questioning look on my face and he said, "It did look like he might have a clubbed foot, but those things can be fixed fairly easily. I wouldn't worry about it." Bryson looked back at me and the look on his face makes me tear up now just thinking about it. He was scared, I could tell. I mouthed to him "Is it bad?" He shook his head yes. My doctor continued to talk to me about, I honestly don't know what, he was trying to brush it off as not that big of a deal, trying to make me feel okay, and it was comforting, but I could tell Bryson saw more. The nurses started examining his leg better and found an interesting looking bump on his shin area. They had a pediatrician come in right away to look at it. She said that it looked like a bump on his tibia, but she couldn't tell what it was. They would have our normal pediatrician come in later and take a look and maybe do some x-rays to figure out what it was. But otherwise he was nice and healthy! I remember laying on the bed feeling somewhat helpless as everyone gathered around Dylan examining him. But I also was feeling an OVERWHELMING peace. For whatever reason, I did not allow myself to even think about what could possibly be wrong (which is SO unlike me...I am an over thinking worrier). I just KNEW at that moment that everything was going to be okay.

They wrapped him up, Bryson held him for a little bit while he brought him over to me. I held him and didn't even think about his leg. I didn't want to look at it yet. I don't know why. I look back now and I think Heavenly Father just wanted me to enjoy this new baby and enjoy the moment without stressing. I'm glad, because I look back and that moment was filled with happiness and only happiness.

After a lot of cuddling and loving, Bryson went with the nurses to the nursery to get him bathed while they finished getting me all cleaned up and moved to the recovery room. I was still in happiness bliss. No worries. I felt great. Dylan seemed perfectly normal and healthy, besides whatever this "small" issue with his leg was.

Once Bryson came back with Dylan from the nursery and we finally got a moment to ourselves. Bryson started telling me about what he saw and thought at the moment he noticed something was wrong and he showed me Dylan's leg. His foot did look "clubbed" or something. It was turned in funny and just a little more different looking than his other foot (wider, flatter, shorter). His ankle didn't look right. There was a rather large bump on his tibia (or so we figured). It almost looked like the bottom portion of his leg was broken. We questioned whether maybe he broke his leg in utero and it healed funny being all cramped up. The biggest issue that we could see though was the fact that his leg was much shorter than his right leg.

We (probably more so me than Bryson) chose not to think about it. We talked about it and we both felt peace knowing whatever was wrong, he was going to be okay. I told him I didn't want to dwell on it until we knew for sure what it was. I, for whatever reason, was able to really not even think about it. Bryson struggled a little more, I found out later, like any dad would. I was just so happy about this new, precious, perfect (in our eyes) little bundle. He was such a sweet baby from the very beginning. SO good. We sat and admired our new addition, giving him lots of love and got some rest.

Later that morning a doctor from our pediatrician's office came in. She has been an angel! She wasn't our normal pediatrician, but it was MEANT to be that our doctor was on vacation at the moment and she came in his place. She came and examined him and her guess too was that he had a clubbed foot, no idea what the bump was but it didn't seem too serious. She talked to us about his leg discrepancy and was telling us about this leg lengthening surgery that they do nowadays and really made us feel more at peace with the whole thing. She told us about her daughter and how she was born with some severe hip issues and has had to be in and out of the orthopedic surgeon's office for many years getting things fixed. She told us we would become best friends with our orthopedic surgeon, but that what he (Dylan) seemed to have seemed to all be things that could be fixed. She referred us to her orthopedic surgeon (who happened to be the head of the Orthopedic Department at the Children's Hospital) and she made a few calls for us. She got us the surgeon's personal assistant's direct line so we could get in as soon as possible (instead of the months wait that it typically is). We made an appointment for the next week and that was that.

We tried really hard to not think about it. But it was hard. We couldn't help but start to think about all the "what ifs". We couldn't help but imagine how this would all affect Dylan's life. And at this point we had NO idea what it all was. However, we felt an overwhelming peace knowing he was going to be okay and we tried to always think about that and remember that feeling whenever we started to think or get overwhelmed with all the what ifs. Our families were all amazingly uplifting and positive.

As the appointment drew closer with the orthopedic surgeon reality of it all started to sink in for me a little more and I started to become a lot more emotional about it. No matter what this all ended up being, it was pretty obvious that this was going to be a pretty big part of Dylan's life. Would he have to have surgeries? Would he be able to walk? If he could walk would he walk with a limp? Would kids make fun of him? Was there something else wrong associated with this? I found myself crying myself to sleep the couple of nights before the doctor's appointment.

The night before our appointment, I couldn't sleep and started looking up this leg lengthening surgery that the pediatrician had mentioned. As I was surfing different websites and reading about it, I kept reading this "fibular hemimelia" condition and decided to google that. I found a picture of a leg with fibular hemimelia and immediately knew this is what Dylan had. The tell tale bump on the tibia with a dimple. It was exactly what Dylan had. I nudged Bryson (who was asleep next to me in bed) and showed him the picture and told him this had to be what Dylan had. Further searching of fibular hemimelia found me reading the word amputation over and over and over and over again. I was HYSTERICAL. Full on shaking sobbing. I finally put my iPod down and forced myself to go to bed because I couldn't handle it.

As we walked into Childrens Hospital the next day, Bryson and I were a bit overwhelmed. I was extremely puffy eyed. Like I seriously felt like I had been punched in the face and couldn't open my eyes all the way. That's what extreme hysterics does to you. :) All thanks to Google! :) As we waited in the orthopedic department waiting room, I kept welling up with tears. And each kid that walked in, most with severe orthopedic problems (scoliosis, cerebral palsy, major deformities in their backs or legs) I had to bite my lip to keep from just breaking down bawling. Was that what Dylan had? Or maybe he has what that kid has? Obviously my mind was going crazy thinking the worst.

Once in, we talked about the issues with the nurse, and then a resident student came in to exam him. He said the foot didn't look clubbed, which was a surprise to us since that is all we had heard from anyone at the hospital. He said he didn't know what the other leg issues were and would have Dr. E (the orthopedic surgeon) come in. As soon as Dr. E took one look at Dylan's leg, he said what I had already figured out the night before. X-rays were taken to confirm it.

Dylan has what is called Fibular Hemimelia, or what the doctor liked to also call Longitudinal Deficiency of the Fibula...in other words, Dylan has no fibula bone. The fibula is the smaller of the two bones typically found in a leg below the knee. He also has Congenital Short Femur, which means that on top of having no fibula, which contributes to the lower portion of his leg being shorter, he also has a short femur. So that is the official diagnosis. He does not have a clubbed foot as originally thought. The foot just appears clubbed or turned in because it doesn't have a fibula bone to help anchor it straight like a normal foot would. But other than that, the foot is in good condition. In fact, the doctor was impressed that his foot was in as good of a condition as it is, because typically with Fibular Hemimelia they don't have a full functioning foot. They typically have missing toes and feet bones. Dylan has all five toes and it appears from the x-rays that he has all the necessary foot bones as well. This is a good thing and can be helpful in the future as long as the foot stays functional...as in, as long as the foot is able to bear weight and stretch and move. The bump on his tibia is the actual tibia bone bowing (bending) and is typical with Fibular Hemimelia. There is a very small chance that this will correct on it's own as time goes on, but most likely will need surgery in the future to straighten it out.

How severe is Dylan's case? On a scale of 1 to 10 (10 being most severe, 1 being best case possible), he put Dylan at a 7, maybe 6. Dylan's leg deficiency is quite severe. Right now it's about 30% shorter than his other leg and that will most likely be the case the rest of his life (without any sort of intervention). The fact that he has what appears to be a functional foot bumps the severity down a notch, but only time will tell what the foot can do for him. The good news is that this condition is not associated with any other conditions or disorders as far as heart or brain or other body parts are concerned. It's just the limb. It's fairly rare, but it's not believed to be genetic. Just a "hiccup" in the gene sequencing that goes on in the first 4 to 8 weeks of gestation.

What can they do?? At this point we can't do much of anything. The doctor said to just let him be a normal baby...let him crawl, let him walk if he wants to try to walk (eventually). And that's what we plan on doing. We will be going to the orthopedic surgeon on a regular basis (every 3 months or so for now) to redo x-rays and see what kind of progress he is making on his own. They'll be checking the growth of his femur, and the growth and straightening of his tibia. There is a very small chance that he might have a portion of a fibula in there that isn't showing up on x-rays because it's too cartilaginous to show up yet, but it's not looking like it so far and I don't think it would make that much of a difference if that was the case anyway. But they'll be checking for that. We'll be checking to see how his foot develops. As of right now his hips appear to be in good shape and not affected, but they'll be keeping an eye on that as well. As time goes on, we'll be able to come up with a game plan depending on how things progress and develop. As far as the future goes, he's got a long road ahead of him. There are different options that are available, but until we know more about how things develop we don't know which option(s) is the best. At this point nothing can be ruled out and nothing can be decided on. The different options that we will most likely have to decide on later are risers/lifts (special shoes to help make up the difference), leg lengthening surgeries (which would be years and years of surgeries to help lengthen both his femur and tibia), and/or amputation.

We left the appointment feeling so relieved to finally know what it was, but also VERY overwhelmed. We have a lot of hard decisions to make in the future. Decisions that will affect the rest of Dylan's life and it's overwhelming to think about it. We feel very blessed knowing that it obviously could be a lot worse. We know Dylan will live a full, happy life no matter how it goes down. The advancement in prosthesis these days makes amputation not nearly as scary to think about. We know he would be able to live a very active life with a prosthesis, if that needed to be the case. But the thought of amputating our son's leg is hard to swallow. However if it's the best thing for him then that's just how it is. If he ends up being a candidate for the leg lengthening surgeries instead (which is questionable with how severe his deficiency is) and we feel that is the best route, then we will do the years of different surgeries to try to get his leg to function as normal as possible. We just have no idea what is going to happen.

At this point we are enjoying the awesome, sweet baby that he is and trying not to dwell on what we are going to have to do in the future. But I'd be lying if I said there weren't still moments of tears shed, feeling very overwhelmed thinking about everything Dylan will have to endure (no matter what route we end up taking) . The comforting thing is knowing Dylan will know nothing else. We know he was prepared for this life. We know Heavenly Father wouldn't have given him this life long trial if he couldn't handle it. The day we had Dylan, my aunt said on facebook "Welcome to earth little warrior :)" before she even knew anything about what was going on. We read that and couldn't believe how perfect that comment was. He is our little warrior and he will get through this because he is strong enough to, no question there. We only question if we are strong enough to! :) We know there are going to be rough days/weeks/months ahead. But we have faith we will get through this, we have faith Dylan will get through this. He has family behind him, he has a brother who is so incredibly in love with him and we just know Kaden will be a protective, comforting force in the future for Dylan. He is going to be one strong, special boy at the end of all this.

We are so grateful for the numerous blessings we have received. From the peace felt, to the pediatrician who had been through something similar and had the hook ups, to the blessings and knowledge promised in blessings received both on Dylan's end and ours. We feel very blessed and at peace with this. It'll be a rough road ahead, both emotionally and physically for Dylan, and emotionally for us to have to watch our baby go through this, but it'll end well and we know this. We feel so blessed to have such a special spirit in our family. And we feel honored to know that Heavenly Father trusted us with not only one of his children, but a very special one at that.

We go in next month for a check up and we'll keep everyone posted. Keep Dylan in your prayers (maybe send a few for us too). Love you all!




He's such a HAPPY boy!!


Funny story...at birth Dylan was 17 inches long. Kinda small, we thought, but didn't think too much of it. At his 2 week appointment he was 20 inches (maybe 21, now I can't remember). We (Bryson, me, and pediatrician) all started laughing as we realized they must have measured his length using his short leg at birth, not realizing it was much shorter than his other leg. Otherwise, he had one crazy growth spurt in two weeks! :) From now on we will make sure they measure his "normal" leg so we can get an accurate length measurement. :)